Afraid to Eat, Travel & Touch: Inside the lives defined by Emetophobia

The silent epidemic affecting millions.

Image credit: Ante Samarzija

Image credit: Ante Samarzija

Emetophobia explained

Imagine your worst fear. Then imagine that fear, the very thing you’re terrified of, is something you feel attacking you from all angles, as soon as you leave the safety of your home. Nothing seems to curb it, you feel your own brain is working against you. The obsessiveness, the need for control, a condition so relentless, that most sufferers truly would not wish on their worst enemy.

Emetophobia is a debilitating, irrational and crippling fear of vomiting. Whilst the experience is unpleasant for everyone, those with Emetophobia are controlled by the all-consuming terror of vomit. Exhausted with being told “but no one likes being sick”, Emetophobia sufferers surpass a basic “dislike” for the bodily motion. What sets them apart is the relentless and paralysing daily grip the fear has on their lives. The condition is a multifaceted one and rarely presents itself as isolated. It brings with it a host of other collateral mental health issues. 

For many, avoiding illness becomes avoiding life.

Image credit: Crina Parasca

Image credit: Crina Parasca

A daily battle

Emetophobia dominates its sufferers with persistent intrusive thoughts. The condition operates by warping the real and the imagined together. Whether it's a funny feeling in your stomach, a change in your eating routine or even leaving the house, Emetophobia is a condition which raises its ugly head in all corners of a sufferer's life.

To make some things clear:

Sufferers cannot stop these intrusive thoughts

Sufferers are not "dramatic", they are living through the hellish reality of the condition.

This phobia can be debilitating, affecting eating habits, travel, education, social life, and even decisions about having children.

Telling someone to “get over it” or “face their fear” without support is harmful, not helpful.

What they need is compassion, understanding, and access to proper treatment, like cognitive behavioural therapy, exposure therapy, and in some cases, medication.

Recovery is possible, but it takes time, patience, and the right support, not judgment.

Incessant intrusive thoughts:

What was that feeling in my stomach? Will it make me sick?

Was that chicken cooked enough?

What was the expiration date on that packet?

Have you washed your hands? Wash them again just in case.

I can't touch that handle.

Image credit: Clay Banks

Image credit: Clay Banks

The gender gap

It has been estimated that up to 6 million, or around 8%, of people suffer with Emetophobia in the UK alone. Remarkably, for such a common and life-altering condition, research is relatively in its infancy, and the condition is widely misunderstood even by health professionals.

Although statistics are few and far between, research suggests that 85-97% of Emetophobes are in fact women.

Pie chart created by Ellie Gelber, using data from Emetophobia Free & Hunter and Antony (2009) & Philips (1985).

Causes

Like many mental health conditions, Emetophobia does not have one distinct cause. Sometimes a traumatic vomiting experience, often occurring in childhood, can lead to the condition presenting itself later on. However, a combination of learned behaviours, eating disorders and other biological factors can contribute.

Some research has shown that women are more prone to feelings of disgust than men. Additionally, neurodivergent people have been considered more at-risk of developing Emetophobia due to the sensory attack that occurs when an individual is unwell.

For a condition that affects so many, research surrounding it is limited. Many sufferers feel dismissed and misunderstood even by clinical professionals, which begs the question of why such a life-altering condition is recognised by so few.

Image credit: Adrian Swancar

Image credit: Adrian Swancar

A precursor to more?

Research suggests that is is difficult to both live with Emetophobia and to do so without a secondary mental health condition. By its very nature, Emetophobia perpetuates the growth of other conditions.

These are only a handful of the secondary conditions. To live with the condition is to live to accept the by-products of the illness.

According to recent statistics, there are an estimated 750,000 OCD sufferers in the UK alone. There is a stark overlap between the traits of Emetophobia and the traits of OCD. Both are obsessive, irrational, and control the sufferer in a way that can make them feel out of place.

Infographic created by: Ellie Gelber.

Infographic created by: Ellie Gelber.

Infographic created by: Ellie Gelber

Infographic created by: Ellie Gelber

"Initiatives that lead to increased awareness of Emetophobia and OCD is something supported by Anxiety UK as we hope that this will lead to further treatments becoming available for both conditions, which can be disabling to live with when severe."

Anxiety UK spokesperson

All about control

For many, Emetophobia is about a lack of control. To vomit is to be fundamentally out of control. While, for the body, it may be the most natural reaction to keeping itself safe, for those with the condition, vomiting can truly feel like the world's end. 

So, whilst Emetophobes can’t necessarily control the outcome of whether they are sick or not, they can control preventative measures. This may include:

  • Excessive hand washing
  • Opening door handles with sleeves
  • Avoid any food that needs to be eaten with hands
  • Using gloves in public, especially during activities such as grocery shopping
  • Avoiding public transport
  • Obsessively checking food expiration dates
  • Avoiding any social settings where alcohol may be present

This obsessive control pattern leads to, perhaps in the short term, feelings of safety and control, but is damaging long term for recovery opportunities.

The safety behaviours undertaken by Emetophobia sufferers result in them becoming ill much less often than the average person. As a result, the infrequency in getting sick, makes the thought of it that much more terrifying.

Over-analysation is a key component of the condition, with a constant need to fulfil certain rituals and other safety behaviours. Enshrined at the heart of an Emetophobe is an inability to stray from their “safety” routine, the thought of not carrying out those actions is simply impossible. For Emetophobes, this list of avoidance behaviours can make the thought of even leaving the house too much to bear. When 95% of one’s mind is consumed by intrusive thoughts, safety behaviours and anxiety, 5% of brain space simply is not sufficient to sustain other activities such as work, schooling or social life.

Image credit: Sivani Bandaru

Image credit: Sivani Bandaru

Infographic created by: Ellie Gelber

Infographic created by: Ellie Gelber

"Without resolving the underlying memory or belief—such as “vomiting means I’ll lose control” or “if I’m sick, I’m in danger”—progress can stall. EMDR works because it addresses what’s beneath the fear, not just the fear itself.

"This kind of treatment rewires how the brain stores and reacts to distressing experiences. It doesn’t teach you to cope with fear—it teaches your brain that the fear is no longer necessary. And that’s where real freedom begins."

Speaking on EMDR: Maj (Retd) Cormac Doyle, registered mental health nurse, The Bridge Charity.

An expert's opinion: Professor Veale & Dr Keyes

Professor David Veale is a consultant psychiatrist at the South London and Maudsley NHS Trust and is a leading expert in anxiety disorders, including Emetophobia. He has spent decades working with patients to treat this often misunderstood condition.

Professor Veale is one of the founders of the world's first Emetophobia charity, Emetophobia Action. Founded in 2020, the charity is specifically targeted at helping sufferers. He also co-authored, alongside Dr Alexandra Keyes, the self-help book“Free Yourself from Emetophobia: A CBT Self‑Help Guide," which has been lifesaving for so many.

Professor Veale has been responsible for some of the most effective and life-altering CBT treatments for Emetophobia. When discussing treatment approaches, he noted the importance of patient's relinquishing control to be successful at recovery long-term. He said: "It's all about giving up control, tolerating uncertainty and allowing yourself to experience the anxiety and disgust and be able to do the things in life which are important to you."

Dr Alexandra Keyes is a Clinical Psychologist at the Centre for Anxiety Disorders and Trauma. She has also worked closely with Professor Veale, co-authoring their self-help guide and co-founding their charity Emetophobia Action. Dr Keyes noted that research has been challenging due to lack of awareness surrounding the condition: "One of the biggest findings so far is just the lack of an evidence base for this, as there are for other types of anxiety disorders. So we don't really know with the same level of certainty what is as effective in treating this condition from the limited evidence there is."

She added: "But it's really striking actually how little work and research has been done with Emetophobia and I think that's for quite a lot of reasons, maybe because it often gets misdiagnosed or sort of it's considered quite difficult to treat.

"Emetophobia also often gets lumped into lots of other things where it actually is a lot more severe and has a hugely devastating impact on people."

Dr Keyes also noted that it is vital for parents, carers and other adults to try to notice the signs of the condition in childhood, as this is where the condition is most often triggered.

She continued: "I think prevention is always going to be better than a cure with any sort of mental health problem. What we know for Emetophobia is that it typically starts earlier in childhood than other phobias and other anxiety disorders.

"So I think definitely like the early signs that I would want to look out for and encourage parents to look out for is if there's any sort of behaviors around food refusal, food pickiness, any sort of concerns or over exaggerated concerns or worry about illnesses or viruses spreading .

"Sometimes children can show very subtle signs of distress that maybe they don't understand themselves and they might not go to their parents to ask about.

"Anxiety manifesting in other ways like tummy aches or sort of physical sensations like headaches.

"I think that's the way that children often show distress and that can be particularly important to pay attention to if there has been an episode of vomiting where the child was very distressed."

"I think if GPs and schools could better recognize this problem and signpost earlier and offer signposts to psychoeducation, books, websites, self-help, I think that would be amazing."

"I'd say the most extreme case I saw was someone who told me that they electrocuted themselves when they thought they were going to be sick."

Professor David Veale, Consultant Psychiatrist at the Maudsley and Nightingale Hospitals. Credit: Ellie Gelber.

Professor David Veale, Consultant Psychiatrist at the Maudsley and Nightingale Hospitals. Credit: Ellie Gelber.

"Imagine you're at the top of a really, really tall building and someone tells you just to jump. No safety equipment, no landing mat, just jump. You can't."

Millie Pearce

Image credit: screenshots with consent, @milliepearce03 TikTok account.

Image credit: screenshots with consent, @milliepearce03 TikTok account.

Millie Pearce, content creator and Emetophobia sufferer. Credit: Ellie Gelber.

Millie Pearce, content creator and Emetophobia sufferer. Credit: Ellie Gelber.

The Human Impact

For Millie Pearce, this is a cycle she is all too familiar with. Millie is a longtime Emetophobia sufferer, who has found solace in sharing her battle with challenging and trying to overcome the condition via her TikTok account, which now has over 10,000 followers and over 1 million likes.

Millie has faced discrimination due to her condition, which she said resulted in unfair termination from a previous job. Additionally, like many sufferers, she found schooling and college extremely tough.

A combination of boredness, and a desire to stop the misinformation surrounding Emetophobia, led Millie to create her TikTok page, which has become a lifeline for many of her followers.

She said: "I wanted to help as many people as I could, and here we are now, 10,000 followers later.

"It's a lot of pressure, but I receive so many messages every day and it just fills me with so much joy that I can actually help people, even if it's just a few.

"It makes my day better."

Akin to many sufferers, Millie often finds herself feeling "trapped" in daily situations that are taken for granted by most.

She continued: "To help the condition it's involved me putting myself in these really uncomfortable positions.

"Appointments are a really tough one for me, like getting my hair cut, getting my nails done.

"As much as we're perhaps aware that these things probably aren't going to make us sick, our brain just does not get it. And it's just the most frustrating thing to explain."

Accounts such as Millie's are slowly paving the way to acceptance and awareness of this extremely under-researched, and yet widespread issue.

Emetophobia and its accompanying mental health conditions strip opportunities from thousands, and Millie noted the struggle, particularly as someone in their 20s, being prohibited from experiencing life to its full potential.

She continued: "When you have a Emetophobia, home is your safe space.

"Going anywhere that involves experiencing other cultures is something that everyone wants to do.

"Everyone wants to travel, but the idea of going somewhere where the food isn't familiar, the living conditions aren't familiar, the smells aren't familiar.

"Any tiny sensory difference can trigger the condition."

Millie has built her online precense through supporting and offering advice to fellow sufferers. She explained that keeping worries and anxieties to oneself, will only make the condition worse.

She said: "Especially younger people, if you're not ready to go to therapy because, you, know when you're 13 telling your parents I want to go to therapy, it can be hard.

"If you're in school, please just tell your teachers everything.

"I was definitely a victim to just bottling all up.

"But then the moment I started telling my teachers, I got extenuating circumstances, they made accommodations for me and it made life so much easier just knowing that somebody there knew what I was going through."

Millie Pearce, content creator and Emetophobia sufferer. Credit: Ellie Gelber.

Millie Pearce, content creator and Emetophobia sufferer. Credit: Ellie Gelber.

Recovery IS possible

The Thrive Programme is a treatment programme founded by Rob Kelly. It is a specifically tailored Emetophobia treatment programme delivered by Emetophobia-Free . The programme has helped nearly 20,000 people worldwide overcome the condition, and claims to be the only proven successful programme to overcome Emetophobia based on the latest neuroscience. Rob is also the author of the Emetophobia-Free manual: "Cure Your Emetophobia and Thrive: The Researched-backed Self-help Programme to Overcome Your Fear of Being Sick."

Rob, although not a current or previous Emetophobia sufferer, felt encouraged to focus on treatment for the condition after helping a previous partner through their struggles with it. Rob has built both his programme and self-help guide on the basis of treating Emetophobia as a multilayered state, more specifically, as a condition with 26 different interacting components.

Rob's and other researcher's work looks at the gendered Emetophobia gap with a "disgust propensity lense". This means that, generally, women are much more likely to succumb to feelings of disgust compared to men. This therefore leads to women making up the overwhelming percentage of Emetophobia sufferers. Additionally, Rob focusses on tackling "learned helplessness" with his sufferers. Many Emetophobia sufferers experience such helplessness, meaning that because previous attempts at recovery may have been unsuccessful, they resign themselves to the notion that no future treatment may ever work.

"The helplessness sometimes is so huge," Rob said.

"I speak to people all over the world and they say, oh, I bought your manual five years ago but I've been too scared to open it.

Image credit: The Thrive Programme

Image credit: The Thrive Programme

Rob Kelly, Founder of The Thrive Programme. Credit: Ellie Gelber.

Rob Kelly, Founder of The Thrive Programme. Credit: Ellie Gelber.

"Because they know it's the final option, and they don't want to fail at it, so it's still sitting there."

He added: "Emetophobes think about it [being sick] a minimum of 5,000 times every single day.

"Most of them reckon that somewhere between 90 to 95% of their daily thoughts are either directly or indirectly related to it, and we have about 50,000 thoughts a day.

"Most of your day in the back of your mind, You're thinking either directly or indirectly about it in some way, shape or form."

Instagram account credit below: @emetophobiafree

Where do we go from here? Time to remove the stigma

If you or someone you know needs support with any of the topics discussed, there is help available:

OCD Action: Helpline: 0300 636 5478
Email: support@ocdaction.org.uk

OCD UK: Helpline: 01332 588112
Email: support@ocduk.org

Anxiety UK: Helpline: 03444 775 774
Text support: 07537 416 905
Email: support@anxietyuk.org.uk

Mind: Infoline: 0300 123 3393
Text: 86463
Email: info@mind.org.uk

Emetophobia-Free Information: via their online form.

Self-help books

The Emetophobia Manual ,by Ken Goodman

Free Yourself from Emetophobia: A CBT Self-Help Guide, by Dr David Veale & Dr Alexandra Keyes

Cure Your Emetophobia and Thrive: The Researched-backed Self-help Programme to Overcome Your Fear of Being Sick, by Rob Kelly

Take a quick quiz to see what you've learned...

Quiz created by Ellie Gelber via Flourish